There’s something a few people know and it really is only a few. It’s something that has been hard for me to tell anyone and even harder for me to deal with. I have a blood disorder aplastic anemia and it has entirely changed my life.
I found out on top of it I had Myelodysplastic Syndromes (MDS) which needed to be treated with chemotherapy, which would be extra difficult with my condition as both lower the amount of blood cells and platelets you have. I am now finished with the chemo, fingers crossed one test left. It has been a rough journey but lots of wonderful people have helped me along the way. I have wonderful friends, family and partners. I have met some great medical professionals, I honestly think they couldn’t have been better especially the poor nurse I emptied my stomach on during my first session.
So today the hardest part of it all happened someone close to me who I really care about, one of the few people I trusted to tell. Accused me of lying because I still have hair. I don’t still have all of my hair I shaved bits of it as they were the patches that were falling out, I cut it short and what’s left of it is much thinner but yes I am lucky to have some left. I am lucky that my wonderful doctor picked a chemo drug for me that doesn’t make all your hair fall out. I am lucky that I am still alive thanks to the wonderful doctors but I didn’t need this attitude it has broken my heart more than a little. So to anyone who thinks I would make a thing like this up I am adding a link to the drug I was being given where is specifically says you are unlikely to lose all your hair. Also fuck you.